Have you ever wanted to just fast forward your life? I know that I have - today we sort of got a little fast forward button on our stay here in the hospital. We moved from ICU to a progressive care unit! How exciting is that? Our quoted 5-7 days changed to 24 hours! We are still in a closely monitored unit but it is certainly progress and a much less intense environment. She is off oxygen and doing well with the trach open. We haven't yet tried to cap the trach because she is still somewhat sedated and still having to be suctioned for the secretions. She has watched some tv and been in and out today. We even got a glimpse of a smile from her when we were reading her comments from the blog. It has been a great day!
Last night we took turns sitting at her bedside. It is SO crazy how your sense of time is left at the door when you walk into these walls. My sense of time isn't so good anywhere so here I sort of enjoy not being the only one who is clueless to the clock. However, I did watch the clock to be sure and make the "Midnight Madness" sale in the gift shop last night. It was from 11pm -2am, there was some cute stuff and I enjoyed a good bit of retail therapy in my outing! The sleeping situatuion was hilarious! Let me just say I love my hubby and now I have even more reason to love and appreciate him - he doesn't snore! I realized last night that not all spouses are so fortunate. I had the first shift last night at the bed side - after my shopping trip- and there is only a chair to sit in. So knowing that I didn't expect any sleep but the mom in the pod next to us I guess had a more comfortable chair, perhaps one that reclined, and she was in a deep sleep! One that caused her to snore REALLY loud as if she was getting the best nights sleep ever. I am sure she needed it and so I am happy for her but I did think perhaps I was on candid camera and they had a fake snorer just to see my reaction! When Darrell and I switched shifts early this morning I warned him but he failed to warn me about the sounds I would encounter in the family room! So the family room is private for the PICU parents at bedtime - there are recliners and they provide pillows, blankets even muffins and coffee when you wake up. You sort of have a slumber party with 20 or so other parents. As with all slumber parties you do wake up really tired from the lack of sleep. Only at this party it wasn't all the chit chat that keep me from falling asleep - it was all the snoring! There was all kinds of snoring patterns going on. I am sure that a few had sleep apnea - or a grizzly bear was snoozing among us! Tonight will be different for us but knowing that room is full every night of the week, of the month, of the year is a humbling. Not because of all the snoring you must endure during your stay but because you know how your heart hurts for your child as you realize all you can do is love them through it. You share that with every parent no matter how different you may be outside in the world or how loud they snore. Here you are just a mommy or a daddy that want there baby to be safe, healthy, happy and loved! And as it should be - for we are all created equal!
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33 comments:
Gracie I always knew you'd move up in the world! :)
Your mommy's making me laugh reading the latest post! (Judd is laughing too..but his snoring impersonation looks and sounds more like a pig than a bear!)
Love...Aunt Sheri, Judd, and Baby Trey..waiting at the bus stop :)
OK, Speaking of Sleeping. Your brother, Judd slept in Mr. Ben's and Mrs. Alice's Bed. When he came over yesterday afternoon, Judd was asleep. I put him on our couch, but he did not seem to like the constant hands trying to wake him up.(Christine, Courtney, William, Catherine and your baby sister Caroline) So, I moved Judd to my big bed and he slept for an hour and a half.
Needless to say, when Judd woke up he was ready to play.
Hope you all have a great night. Love, Mrs. Alice
I have to say that I did not expect to read the latest post on this blog and laugh so hard my belly hurts.....praise God for laughter! I know I have prayed for there to be things to make you smile everyday...but I didn't expect Him to deliver this way :)I can just envision Bridget holding a giggle in during the snoring chorus.
Grace-I am so proud of you for getting better so fast! Keep it up girl and you will be home before you know it.
Lots of love-
Grace, I am a friend of your Mommy and Daddy and just wanted to let you know that I am praying for you to get home soon. I know that you will get well soon so you can go home and be a big sister to your brother and sister. I will keep praying for you and seeing your progress on your blog (which is really pretty cool). Talk to you latter. Mr. Bobby
Go Gracie!!!! Keep moving from room to room and play hide 'n seek with the nurses. I'm so excited that you're doing so well. I know who the prettiest and smartest girl in that hospital is, do you? That's right............it's Gracie!
Love you,
Granbubbie
Is there an Emmy or an Oscar for Best Blogger? If so, it's unamimous..........."and the Oscar, Emmy, and/or Bloggy goes to Bridget!
Whoo..hooo Gracie!! I am so excited about you moving into a new room. You are even closer to coming home!! Praise be to God!! Princess the puppy says "yippeee!!"
We love you,
Ms. Ali, Mr. Tony and Shelby
Bridge, yet another reason to love your husband...:)
Way to go Grace, you keep on moving. God is so Awesome. Tell you mommy I was laughing and laughing at this post.
Bridget,Along with the muffins and coffee, the sleeping room shoud have breathe right strips and earplugs!
Cassidy
Wow Bridget I love reading your updates! This one gave me much joy to know that God is truely answering all of our prayers and that a merry heart is good medicine! Girl you had me laughing! Gracie your Mom's a hoot and a great writer!
I remember going on a mission trip once and sleeping on a gym floor at the church we stayed at with about sixty other people... the noises were less than desirable and quite loud at times, so my imagination was active with your great description. Praise GOD hopefully tonights rest will be much better and much needed.
Your faithful intercessors at SUG!
Grace, I am sure that this is not the first or last time that you have amazed your parents. God is great and he has big plans for you. So, get well soon and we are praying for you every step of the way!
Love,
Suzanne and Family
Gracie, I love you. I am very happy you are doing so well. I am so looking forward to having long talks with you. Welcome to all your new opportunities.
We love you so very much
Love, Papa Dave
Gracie, I LOVE YOU>>
Yea, Grace! I'm so glad you're doing so well! I am sure it will be in no time that you will be up singing and dancing! :)
Love,
Mrs. Clark
Grace,
I am so excited to hear that you are
doing so well. This is my third attempt to try and send you an e-mail. Tell your Mom that I had a big laugh, reading about last night's events. Tell her that if snoring effects her that way, she had better never spend the night in the same room with Grand-Pa Les. Ha!Ha!
Remember I love you, looking forward to the day, when I can come see you.
Maybe Grandonna, will take us both
shopping.
Here I go trying to get this note
to reach you.
Love You Bunches!!!
Aunt Darlene
Gracie, Your GranDonna loves you so very much. She is so very happy you are doing sooooo well.
Gran Donna and Papa Dave look forward to you spending the night with us when you feel better.
The ladies at the Donut shop were asking about you. I can not wait until you and I go to the Donut shop and you tell the ladies exactly which donuts you want.
Love, Papa Dave
Okay, I am on the floor laughing at the latest post. Laughter among tears - isn't that beautiful? You all are in my prayers.
Love, Amy
Grace,
We are so excited to hear how well you are doing! Before your surgery, I asked you to take good care of your Mommy & Daddy and it sounds like they are doing well so you must have done a great job! I am happy to hear that your Mommy didn't even faint! :) We are looking forward to coming to visit you when you are feeling up to it.
Love,
Mr. Josh, Ms. Denise, Hannah & Grant
Dear Roth Family,
Thanks for the wonderful news. My eyes tear up each time I read about the progress - especially because of my unexpected hospital stay in May with Guillean-Barre. Thank God for competent doctors, caring nurses, and loving family and friends. Each day someone would say they didn't understand my rapid progress and I would boldly say - I do, it's God! I know you are witnessing His abiding love to each person you come in contact with in the hospital - even the snorers!
May our loving Savior continue to keep you strong. And Grace, remember the words from one of my favorite children's songs "I am Jesus little lamb, ever glad at heart I am, for my Shepherd gently guides me, knows my need and well provides me, loves me every day the same, even calls me by my name." You can sing Grace is Jesus little lamb -
Looking forward to another update,
Love, Mrs. Schueler
Way to go, Grace!!! I know you are such a big girl, and please let mommy give you a kiss on your hand from Faith and Hannah.
love, Cheri and Ryan
You look absolutely beautiful and radiant today Grace. Nana was so very happy to see you and know how you are progressing so nicely. I can't wait to really have some long conversations with you about everything. You are such an angel and I am sure the most important person at the hospital. Keep giving Mom and Dad good surprising results as you are getting better and better every day. Love Nana
My Sweet, Precious Amazing Grace. I am so very proud of how brave you have been. You are such a big girl. It won't be long until we can go to Pappasitoes, Chick-Filet, Target AND THE DONUT SHOP! Papa Dave said that they where asking about you at the donut shop (which makes me wonder how many times that he has been there lately). I can hardly wait for you and me to once again sing your song "Amazing Grace". I know that God will be smiling, don't you? Remember that God loves you and will always take very good care of you. I love you! Grandonna
Grace - can't wait to see you - SOUNDS like it will be soon. I have a new book I would like to share with you -- Good Dog Carl... we will read it together. Bridget should you ever want to really hear the best snorer in the whole wide world - call me... Sam and I live with him! [and] as for time - I stopped wearing a watch when Sam was an infant
A WONDERFUL GOOD MORNING TO YOU GRACE:
Every day gets better with the reports on how well you are doing.
It just shows what a Special Little Girl you are, and how much you are loved by God and all your family and friends.
Stay Sweet and you will be home before you know it.
Here are some hugs and kisses.
0X0X0X0X.
Remember I love you.
Aunt Darlene
Hey Grace,
It's Sally from the PICU! It was a pleasure to meet and take care of you. I love the pics on your blog of you with your backpack on going to school, they are too cute! I hope you have a speedy recovery and are getting treated like a princess in the PCU!
Hey, Gracie it's Katie Bug!!Mimi told me how wonderful you were doing!When you get into a room I will come and see you.Oh, I also have a fluffy present for you too!!I love you so very,very much!!!And I hope to see you very soon!Bye-bye!! :)
Hey Gracie! It's Mimi. :) I LOVE YOU BABY!! I hear that you are doing so GREAT!! I am so VERY proud of you!! I can't wait to see you! Katie told me how fun you had when she spent the night. Can't wait to see that beautiful smile of yours! GOD BLESS YOU SWEET GRACIE!! :) LOVE MIMI..
Hey Gracie its Jacob just checking on you i love u and hope that ur ok =) Can't wait to see you soon!
Gracie, I hope you had another great night.. Love Papa Dave
Hello Gracie, My name is Marc and I sell your grandpaw his orange tractors. He and your grandma have been keeping me informed of your operation and remarkable progress. You keep up the good work and thanking Jesus for his blessings and you will be out of there in no time. You are surrounded by angels, God bless!!!!! P.S. Make sure your grandpaw John gets you your favorite treat as soon as you are able to enjoy it.....
Hello Gracie, we are so happy and excited you are doing so well!! We miss you and wanted to let you know your little sister says HI!!! So do Caleb and Dylan. They are having fun playing together and calling her "princess". Get well soon so you can come play with us too! Love, Caleb's daddy
Grace,
We just praise the Lord for your quick progress and for all He has in store for you on the horizon!!! Our Abbey has been keeping you in her daily prayers and looks forward to playing with you in the future; maybe ya'll can play with your American dolls together! We look forward to all the other praise reports just around the corner! :)
Hey Gracie girl! Mimi loves you!! :)
Hey there Gracie! We are so thrilled to hear you are healing so fast. Keep on going, Sweetie, and you will be home playing with your brother and sister in no time! We are praying for a speedy recovery. Hope to see your smiling face in person soon!
Love, Sherilyn & Sheridan
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