Tuesday, September 23, 2008

Get ready it's a big week...

For our family this is a big week! For Grace this is one of the biggest in her life. She is having her "big" surgery Thursday. She has had multiple surgeries in the past but this one is big for several reasons. If successful, this will improve the intelligibility of her speech where she can communicate with the average Joe. As it is now, although she has great things to say, we are really the only ones who understand what it is she is saying. I love that Judd and Caroline can understand her just as well as we can and have never asked why her words sound so different. We did our pre-op appointments yesterday and have "the plan" for what to expect but also know to expect the unexpected. Surgery is planned for Thursday morning at 9:00 will take 3 to 3 1/2 hours. They will do the trach first and then the flap and she will be in ICU 5-7 days heavily sedated. Once they wake her, we will move to the progressive care unit and there we will begin learning all the care and things that go with the trach. Once we are in that unit she will be alert and in a more private room. Our stay in that unit will be about 7 days. We are planning on our little "vacation at TCH" to be 14 days. I think by the time we get back I will even miss doing laundry which I currently despise!

This is a good thing for Grace and being objective we know that but our hearts are heavy and unsettled. Not the way I wish we felt but it is and so it goes...

39 comments:

Anonymous said...

Gracie,
Ms. Ali, Mr. Tony and Shelby LOVE you so much and your awesome Mommy and Daddy!! We will continue to pray for you and hold you very close in our hearts.
Love,
Ms. Ali, Mr. Tony and Shelby

Anonymous said...

I am RSVPing to the party. I will be there in spirit. I am praying for you guys. Remember when they take her away that she is covered by a power greater than you can fathom. As Leighton would say, "There is a road from here to there. It's just not always paved." I love you guys and will be praying. Love, Amy

Anonymous said...

Grace & Family,
I want you to know that you will be in my thoughts and prayers. I know that everything will turn out great and TCH will make your stay enjoyable. If there is anything at all that I can do to help you out please let me know.
God Bless You,

Jamie Rodriguez & family

Cahills said...

Hi Grace!!! It's Amber!! I miss you and am thinking of you all the time. I have some neat gifts for you - you can open them at the big party. Give your mommy a huge, huge hug for me. I miss you and love you! So does John Bryan!! He's excited about the party!!

Anonymous said...

Gracie! I love your new website! I look forward to reading it everyday and hearing about your speedy recovery. I love you dearly and I will be praying for you every day! Thanks for inviting me to your party!
Love, Caleb's mommy!

Anonymous said...

Grace,
I am so excited that you have such a great website for us to keep posted on. We will be praying for your surgery to go well and will be checking your website all the time. We love you
Susan, Jason, Cristian and Matthew.

Anonymous said...

Grace & Fam,
We are so excited about reading sweet Grace's website and being able to keep up with the speedy recovery and great success that we know will come from the surgery. We know all too well from experience what it feels like to hand off your child and put their life in someone else's hands. Thankfully, those hands belong to God! We love you all and are praying daily for you. We would love to come visit you when/if that becomes possible. Please let us know if you need ANYTHING. We are here for you in whatever way you need. I know hospital food gets old (although it's not that bad at TCH!), so please let us bring you guys dinner up there one night (whatever you want!)... you can let us know when a good day/time is. Take care and talk...or shall I say blog soon. Love to you all- Chanda, Christian & Hadley

Hadley's Mom said...

Grace & Fam,
We are so excited about reading sweet Grace's website and being able to keep up with the speedy recovery and great success that we know will come from the surgery. We know all too well from experience what it feels like to hand off your child and put their life in someone else's hands. Thankfully, those hands belong to God! We love you all and are praying daily for you. We would love to come visit you when/if that becomes possible. Please let us know if you need ANYTHING. We are here for you in whatever way you need. I know hospital food gets old (although it's not that bad at TCH!), so please let us bring you guys dinner up there one night (whatever you want!)... you can let us know when a good day/time is. Take care and talk...or shall I say blog soon. Love to you all- Chanda, Christian & Hadley

Hadley's Mom said...

Just realized I sent the same message twice. Sorry! New to the whole blogging thing. ;)

Anonymous said...

Gracie and Family,
I was so excited to get invitation to your party. You all will be in our thoughts and prayers throughout the entire process. Look forward to seeing you soon.
Love, Clay, Jennifer, Jackson and Shelby

Swan Family said...

Gracie,
Thank you so much for inviting me to your awesome website! The Swan Family will be praying for you. We will be here if you need anything!

Love, Benjamin, Katie, Ande and Gideon Swan

Anonymous said...

Hi Gracie,

This is your friend Sonia....I miss you!!!!!!! Is chocolate still your favorite candy? My family and I will be praying for you. God has brought you this far and please know that he will continue taking care of you Gracie. Stay sweet my precious little friend.
Love, Sonia D

Cassidy said...

Grace, we will be checking your blog often and leaving you LOTS of comments, so get ready! We will also be praying for you!!! Tell your mommy and daddy if they need some Starbucks we will be on our way to bring them some;)
Love, Landry Land

Anonymous said...

We love your website Gracie!..and love you even much more! :) We have been praying for this party for a long time and know God will be right with you and mommy and daddy the entire time! Judd and Caroline are lucky to have you as such a brave older sister! Love, Aunt Sheri

Anonymous said...

Hello Grace!
We never miss a good party and we are so glad that you invited us!!!
You have an awesome website and I am so excited to read it everyday. I see the picture of you holding your doll Annie-she is beautiful.
We love you sweet girl and we will send you lots of messages!
Love,
Ms. Danel, Mr. Eric, Jacob, Sean and the new babies

Camille, Blake, Pierce and baby Asher said...

Got your blog address from Cassidy and I just want you to know that we will be praying from Singapore... Please keep us updated and know that God is a healer and a protector and He loves your little Grace more than you will ever know.

chrissy said...

Hi Grace!
Amazing website!
More Amazing news about your soon to be stay at TCH!
You are a champ - i know you will do just great through it all!
Give your mom and dad and brother and sister big hugs, and tickle them and wrestle them.. and make them smell your dirty socks... just so they remember you are the big boss of the house.. hee hee.. kidding.. mom and dad!!
You and all are in our thoughts and prayers through all.
Happy bike riding, and loving on your american girl Annie.. I want to be almost 8 again!! Annie sounds great!!
Lots of love to you and your whole family!
Love the Miller's - Chrissy, Jason, Cal Van, Lola and Maggie the dog!

Anonymous said...

Dear Grace,

You will be in my thoughts and prayers this week! I've missed seeing you at school, but once you get back home and settled I would love to come see you.

(And how exciting that you got an American Girl doll and got to visit the store! My daughter, Alyssa, loves them too!)

Good luck! I know you will do great!
Love,
Mrs. Clark :)

P.S. Tell your mom and dad I said hello and they will also be in my prayers!

Anonymous said...

Hi Grace!

What a neat blog website you have! You are such a beautiful girl with such a beautiful spirit! We will be praying for you and know that God will take good care of you and give you and your family comfort and peace.

With Much Love,
Mark, Heather, Grant and Ben Mize

Anonymous said...

Hi Grace,

This is cousin Amy...you have grown up to be a beautiful girl! I haven't seen you in a very long time. I love your website:) I will be praying for you and I know that God will watch over you and protect you. Tell your Mommy and Daddy I'm praying for them too!! I will be checking your website and leaving you messages so be sure to check:) Love you, Amy D.

Anonymous said...

Ephesians 3:20
Now to him who is able to do immeasurably more than all we ask or imagine, according to his power that is at work within us,to him be glory in the church and in Christ Jesus throughout all generations, for ever and ever! Amen.

Our prayers are with you for all to go even better than expected and God be glorified. We love you, The Nichols

Ashley said...

Yay! What a blessing to find this precious blog this morning! As we ran into you and Grace at Panera Bread the other day, I could not stop looking at Grace; she just looked beautiful to me. My parents who were with me said, "who is that adorable little girl?" Well, she is beautiful and adorable and this surgery is just another step in her great story and bringing other people before the throne of God; our Jehovah Rapha. In my quiet time with God this morning he blessed me with this passage out of Psalms and I immediately thought of your family; "those who sow in tears will reap with songs of joy. He who goes out weeping, carrying seed to sow, will return with songs of joy, carrying sheaves with him." Psalm 126:5,6 God will bring such good and glory from this season and I know that God's great harvest of JOY is coming! We love you guys!

Anonymous said...

Grace and Family,

I trust that it will be wonderful! I am thinking of you guys and praying for the best. Take care!

Much love,
Whitney

Anonymous said...

Grace, I am so proud of you. I love your picture of you and your new baby from American Girl. You can both take care of each other, huh. You are very special to our family. My spirit will be there with you even if I can't be.
Love you lots.
Your "old" cousin, Kathy

The Heads said...

Hi Grace,
You don't know me, but I know your mom from MOPS! I love your red headed doll from American Girls, I actually have a Kirsten doll from when I was younger. We are praying for you and your family and can't wait to read more on your blog!
Love, Sarah

Anonymous said...

Gracie, I can't wait to come to the party at the hospital. Will Annie be there, too? I know who the sweetest and cutest little girl in that hospital will be.....Gracie!

Anonymous said...

Grace,

It was so great seeing you last week. Thanks for coming to Case's party. Besides Sydney, you were the only child I knew! (I have only met your brother and sister a couple of times.)

Please come back and visit us anytime. I miss your Mommy and Daddy more than you know.

Have a great day!

Becky

Anonymous said...

Grace and Family,

My thoughts and prayers go out to each of you as you go thru this as a family.

there is strength in numbers.

I will be checking in regularly to read about your speedy recovery.

Best Wishes,
Dan Alvarez

Anonymous said...

Gracie!
Emma and I will say lots of prayers for you! You are so BRAVE!
Emma has an Annie too and will be ready to get them together to play when you come home!
Love, Sherry and Emma Key

Anonymous said...

Dear Gracie-girl,

I love your blog! How fun to see your sweet smile and hear about your adventures. I believe Annie is going to become a very good friend.
Good Luck with your surgery. You are a brave girl and I will be cheering for you loud and clear: “Go Gracie! Go Gracie!” If you listen hard you’ll hear me—I’m the one with the frog in my throat. Croak!
Love ,
Aunt Lynnette

Anonymous said...

Hi Grace. Lots of prayers are going up for you and your family. I know you'll be missed at school, church, and home. We are all hoping for the best and a speedy recovery. God Bless!

Anonymous said...

Gracie,

Thank you for letting us be part of your party and just love you, love you and pray for you and your Mommy, Daddy, brother and sister. You are such a brave and precious girl and we want you to just keep on remembering that God loves you more than any of us and is holding you in His hand. If you get scared, remember that and also remember that your Mommy and Daddy want all the best for their number one girl! Your friends,
Maureen, Ray and Andrew Mikeska

the tichenor family said...

we will be praying for grace tomorrow and for your sweet family over the coming weeks. all of our love and prayers! --the tichenor family

Anonymous said...

We'll be praying for you! God and his angels will be watching over you!

Anonymous said...

What a lucky little girl you are to have your own blog...I am 60 and do not have my own blog. Wow...my precious 9 year old granddaughter has 3 Amercian Girl Dolls and all the books about each of her dolls and she ate lunch at the store in Dallas for her 9th birthday...just like you will get to do NEXT year when YOU turn 9. Wow and I think you have more friends and family who love you than I do as old as I am. Maybe I can be your oldest friend...ha I will be checking on you while you are getting all better. That was awesome too that you walked so far to your school with your precious mom watching you from a distance to keep you safe...just like your sweet God will do for you while you are sick...talk later my new little friend...feel my hugs for you and your awesome family. Love you, me :)

Anonymous said...

Hi Grace--

This is Grant. I played with you this summer at the splash park over in Riverpark. I saw the picture of your bicycle on your website. It is pretty cool! Maybe when you are ready, we can ride bikes together!
P.S. Do you think your mom can teach my mom how to make a website? Your mom is pretty awesome!

Praying for you and looking forward to playing with you soon.

Your Friend,
Grant Mize

Anonymous said...

Gracie,
I haven't gotten to meet you, but I know your mommy from MOPS and she talks about you lots. I love your blog and love reading all about you. You are a precious girl and I will be praying for you and thinking of your family tomorrow on your big day!! God Bless and Lots of love from my family to yours.

Stacey Richards
Jess, Stacey, Drake, and Carter

Anonymous said...

Papa is real glad that your surgery went well and that you are doing good. Hope to see you soon and I love you. Papa Tyer

abby surratt said...

Hi Grace,

This is your friend Abby! I wanted to let you know that I am praying for you and I love you very much. I cannot wait for you to come home so I can give you a big hug!!

Love you,
Abby Surratt