Lucky Girl...

This is suppose to be all about Grace but I too am a lucky girl. How about Grace's gift idea for me? I was SO impressed with her on that post-big words and a huge idea for a 8 year old. I thought her tutor was fabulous but now I am convinced! :) I was totally surprised. I actually was weired out when I saw there was a new post. I knew I hadn't done it and didn't know that D had at that point. As I read it, I went from panic that my little girls blog had been hijacked by a weirdo to complete shock - the REALLY good kind. My hubby is the best and so full of surprises- I am a lucky girl! I find it incredible that he still likes me so much. He has seen all my moods and not all of them are nice, I assure you! So glad he asked me to dance, that is how it all got started, and so glad he followed it up with a marriage proposal three years later. He literally had me from hello!

Fast forward 16.5 yrs from him asking me to boot scoot around the dance floor and here we are today. We had a really busy week celebrating birthdays last week, Caroline, Grace and my mom were all birthday girls. Judd is a little confused about having to wait till March for his since both girls got to have theirs. I want him to stay 3 forever so March seems too soon for me. Anyways, Grace is still doing really well with the trach. Speech is making some improvement although it is hard for us to measure since we understood so much prior to the surgery. We call it Grace-enese - it's our second language. Certainly a stronger voice and in isolation she can make much clearer letter sounds it is just the conversational speech that is harder to evaluate and measure. We had a follow up with the ENT last week and got a great report. We are trying to get a sleep study sooner than the next available, which is March, to get an assessment of her breathing while she sleeps. If all is well and the report shows we are back at baseline we can get the trach out. I am confident it will be out as soon as we have our sleep study. We are hoping to get in done sooner at another hospital or get moved up via a cancellation at TCH. It seems ridiculous to keep it in for 4 months just waiting on a time slot for the test.

Our schedule is so full with therapies, I am not sure how we could have stayed in school. The home bound schooling has been great. It allows us time for all the rehab stuff that she needs without all the time restrictions. Her spirits have been much better the last few days, remember she has been celebrating and that seems to be when she is at her best! The last 4 nights she has run a fever during the night but is fine during the day even without Tylenol so that is a little mysterious. Did you know that when you run a fever your heart rate is higher? It's a new nugget of information for me so I thought I would share. I hope it is nothing but it is a little strange. Being that I am not really into mysteries I hope it goes away tonight.

My computer needs some time at the techy hospital before I can post my recent photos. I do have some fun ones to add so just know the pictures are "in the mail".