This is suppose to be all about Grace but I too am a lucky girl. How about Grace's gift idea for me? I was SO impressed with her on that post-big words and a huge idea for a 8 year old. I thought her tutor was fabulous but now I am convinced! :) I was totally surprised. I actually was weired out when I saw there was a new post. I knew I hadn't done it and didn't know that D had at that point. As I read it, I went from panic that my little girls blog had been hijacked by a weirdo to complete shock - the REALLY good kind. My hubby is the best and so full of surprises- I am a lucky girl! I find it incredible that he still likes me so much. He has seen all my moods and not all of them are nice, I assure you! So glad he asked me to dance, that is how it all got started, and so glad he followed it up with a marriage proposal three years later. He literally had me from hello!
Fast forward 16.5 yrs from him asking me to boot scoot around the dance floor and here we are today. We had a really busy week celebrating birthdays last week, Caroline, Grace and my mom were all birthday girls. Judd is a little confused about having to wait till March for his since both girls got to have theirs. I want him to stay 3 forever so March seems too soon for me. Anyways, Grace is still doing really well with the trach. Speech is making some improvement although it is hard for us to measure since we understood so much prior to the surgery. We call it Grace-enese - it's our second language. Certainly a stronger voice and in isolation she can make much clearer letter sounds it is just the conversational speech that is harder to evaluate and measure. We had a follow up with the ENT last week and got a great report. We are trying to get a sleep study sooner than the next available, which is March, to get an assessment of her breathing while she sleeps. If all is well and the report shows we are back at baseline we can get the trach out. I am confident it will be out as soon as we have our sleep study. We are hoping to get in done sooner at another hospital or get moved up via a cancellation at TCH. It seems ridiculous to keep it in for 4 months just waiting on a time slot for the test.
Our schedule is so full with therapies, I am not sure how we could have stayed in school. The home bound schooling has been great. It allows us time for all the rehab stuff that she needs without all the time restrictions. Her spirits have been much better the last few days, remember she has been celebrating and that seems to be when she is at her best! The last 4 nights she has run a fever during the night but is fine during the day even without Tylenol so that is a little mysterious. Did you know that when you run a fever your heart rate is higher? It's a new nugget of information for me so I thought I would share. I hope it is nothing but it is a little strange. Being that I am not really into mysteries I hope it goes away tonight.
My computer needs some time at the techy hospital before I can post my recent photos. I do have some fun ones to add so just know the pictures are "in the mail".
Monday, November 10, 2008
Thursday, November 6, 2008
Happy Birthday to me.....
Hello everyone, its me Gracie! After seeing that baby from the ETrade commercials working a laptop I thought I would give it a try. Its actually not that hard.
I saw the doctor Tuesday and got a great report but I'll let mommy update you with the details as she is much better at it than me. (She will be pretty shocked to see that I was able to get on here and update my blog! Can't wait to see her face.) I'm here today because its my 8th birthday and I have a gift on my mind.
So mommy, I want to thank you for taking care of and fighting so hard for me over the past eight years. You have been my biggest fan and supporter and allowed me to come so far during that time. Thank you for the countless trips to the doctor's offices, the many trips to therapy, the long, exhaustive phone calls with the insurance companies and all the other major sacrifices you have made in order to give me the best chance to succeed in life. I know all of those things are important, but even without them, I know that just having you as my mommy would be enough. (Oh and daddy mentioned something about you making him a better person too) You are an awesome mommy to me, Judd and Caroline and we love you so much for it. I know I am not always on my best behavior and can create a great deal of frustration for you. I'm sorry for that but one day I will be able to better express myself thanks to all of your efforts.
So, that gift on my mind, well, its for you. You know how I like paying for things since Mr. Ben and Mrs. Alice gave me that Pappasitto's credit card? Well, I hopped on the web and booked you a little getaway for later this month. You deserve that and so much more. I hope its a relaxing week for you. I know it will be a fun one for us watching daddy play Mr. Mom. : ) You can find the tickets in my cubby next to my crayons.
Happy Birthday to me! You are the greatest gift I could ever ask for! I love you.
By the way, to everyone posting on my blog, thank you for all the sweet messages. They have and continue to encourage me a great deal.
Bon Voyage!
Gracie
I saw the doctor Tuesday and got a great report but I'll let mommy update you with the details as she is much better at it than me. (She will be pretty shocked to see that I was able to get on here and update my blog! Can't wait to see her face.) I'm here today because its my 8th birthday and I have a gift on my mind.
So mommy, I want to thank you for taking care of and fighting so hard for me over the past eight years. You have been my biggest fan and supporter and allowed me to come so far during that time. Thank you for the countless trips to the doctor's offices, the many trips to therapy, the long, exhaustive phone calls with the insurance companies and all the other major sacrifices you have made in order to give me the best chance to succeed in life. I know all of those things are important, but even without them, I know that just having you as my mommy would be enough. (Oh and daddy mentioned something about you making him a better person too) You are an awesome mommy to me, Judd and Caroline and we love you so much for it. I know I am not always on my best behavior and can create a great deal of frustration for you. I'm sorry for that but one day I will be able to better express myself thanks to all of your efforts.
So, that gift on my mind, well, its for you. You know how I like paying for things since Mr. Ben and Mrs. Alice gave me that Pappasitto's credit card? Well, I hopped on the web and booked you a little getaway for later this month. You deserve that and so much more. I hope its a relaxing week for you. I know it will be a fun one for us watching daddy play Mr. Mom. : ) You can find the tickets in my cubby next to my crayons.
Happy Birthday to me! You are the greatest gift I could ever ask for! I love you.
By the way, to everyone posting on my blog, thank you for all the sweet messages. They have and continue to encourage me a great deal.
Bon Voyage!
Gracie
Sunday, November 2, 2008
A fresh week...
I look forward to Monday mornings- they are so full of hope! I know that is not the normal response to Mondays but I usually start the week with a list of things to do. In my current profession of motherhood, much of what I do is mundane so I think of ways to improve it or change it up a bit. So when I think about Monday I get motivated and hopeful that this may just be the week, "I have it together". Let me assure you that when I still feel that way on a Friday you and the rest of the world will know it- I will be throwing a party in celebration. So far, I haven't made it past Monday. I am only 34 so I have time, right? This week should be exciting. It is full of birthdays! Caroline turned 2 today, Grace will be 8 on Thursday and my mom will celebrate her birthday on Friday (she wouldn't be happy if I put her age)! I have some cute pics of Caroline to post but my laptop is having issues tonight. Check back and I will hopefully have them posted tomorrow on our family site www.rothtx.blogspot.com.
This past week will NOT go down as a family favorite. I am all about making memories and having traditions for our family but some days and moments I hope they never think about again! We are still having leadership issues around here in the ranks of the little ones. "Just be nice", is a frequent saying through out our days as is "change your color", "go to your room", and some "arg" growling. The other day in frustration I gritted my teeth and groaned not very lady like I know. Anyways, Judd turned to me and said, "Mommy, you need to use your words". That too is a frequent quote around this house I just hadn't been on the receiving end of it before. I was glad to know that they at least listen and understand it. If you know where I can buy some patience I need some - I seem to be struggling with most of the fruits lately!
Grace aka, as she referred to herself today, the birthday girls' sister, is in the full swing of things with therapy and her activities. Our calendar if very full with just her stuff. My planning skills are really being stretched to get it all in these days. On top of that, I think she may be sneaking off to drama classes too. She seems to be creating drama and reacting dramatically to things. She is just beside herself with the smallest trigger and when she gets that way it is not pretty to say the least. Caroline evidently snuck out to drama class too in preparation for turning two and when you get them unhappy at the same time it is loud! I may need to get some earplugs for around the house just to hear myself think. Grace's trach is doing well. I think her body has adapted nicely to the new airway, her monitors have not gone off the last 5 nights in a row. We are going back to see the ENT on Tuesday so I am anxious to know what he thinks about that tad of information. She seems to be breathing well at night. That just reassures us the trach is temporary and that she is safe with the flap. Her speech is somewhat better, certainly stronger but I still don't think "average Joe" would understand her name and phone number should she get lost and she is a wanderer. Hopefully by her next birthday her and Joe will be chatting about all sort of things and he will understand it all! Check back later in the week for birthday pics. Blessings!
This past week will NOT go down as a family favorite. I am all about making memories and having traditions for our family but some days and moments I hope they never think about again! We are still having leadership issues around here in the ranks of the little ones. "Just be nice", is a frequent saying through out our days as is "change your color", "go to your room", and some "arg" growling. The other day in frustration I gritted my teeth and groaned not very lady like I know. Anyways, Judd turned to me and said, "Mommy, you need to use your words". That too is a frequent quote around this house I just hadn't been on the receiving end of it before. I was glad to know that they at least listen and understand it. If you know where I can buy some patience I need some - I seem to be struggling with most of the fruits lately!
Grace aka, as she referred to herself today, the birthday girls' sister, is in the full swing of things with therapy and her activities. Our calendar if very full with just her stuff. My planning skills are really being stretched to get it all in these days. On top of that, I think she may be sneaking off to drama classes too. She seems to be creating drama and reacting dramatically to things. She is just beside herself with the smallest trigger and when she gets that way it is not pretty to say the least. Caroline evidently snuck out to drama class too in preparation for turning two and when you get them unhappy at the same time it is loud! I may need to get some earplugs for around the house just to hear myself think. Grace's trach is doing well. I think her body has adapted nicely to the new airway, her monitors have not gone off the last 5 nights in a row. We are going back to see the ENT on Tuesday so I am anxious to know what he thinks about that tad of information. She seems to be breathing well at night. That just reassures us the trach is temporary and that she is safe with the flap. Her speech is somewhat better, certainly stronger but I still don't think "average Joe" would understand her name and phone number should she get lost and she is a wanderer. Hopefully by her next birthday her and Joe will be chatting about all sort of things and he will understand it all! Check back later in the week for birthday pics. Blessings!
Subscribe to:
Posts (Atom)
